Lincoln has not had a seizure since 9:30 on Saturday morning-that's 60 hours without a seizure!!! Life is getting back to "normal". Unless something changes this means that both medications are finally at the correct dosage. His body also seems to be accustomed to these doses as far as side effects. He is not dizzy, wobbly or tired anymore. He's playing just like he did a couple of months ago. We have the follow-up visit at the Mayo next Tuesday. They expect to have all of the test results back by then so that they can review them with us.
The "official" diagnosis is that Lincoln has Epilepsy with no known cause. According to the literature that we have read & what Lincoln's doctor has said the definition of epilepsy is someone who has had two or more seizures. Lincoln is definitely in the "more" category of that. We don't treat the situation any differently just because there is a name for what he has it just gives it a name. There is still the possibility that he will outgrow them someday and so that is what we keep on praying for. He will have to be on the medication for 2 years. At that point if he has not had any seizures we can start trying to take him off of the medication. If as we take him off of it the seizures come back we will have to continue with medication. But if we take him off the medication and the seizures don't continue then they would consider him seizure free. So hopefully before he goes to Kindergarten he will be seizure free without medication.
Thank you to everyone for your continued prayers & well wishes. We couldn't have made it through all of this without all of you.
Monday, November 19, 2007
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4 comments:
So happy to hear that. Have a great Thanksgiving and travel safely to Mayo next week.
WONDERFUL that he is doing so well! I hope you have a wonderful time as a family this weekend! Blessings!
Can we please get a pic. of Lincoln being his wild self so when we click on your blog that is the first picture we see. I cant handle the bandaged head anymore....its too sad. Ill be waiting.................
Just wanted to let you know that we've been reading all the updates and we have been praying for your little guy! And strength for you as parents to just stay strong for him!
The Stroms
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