Lincoln has not had a seizure that we have seen since May! This is the longest stretch of time since the seizures started over a year ago. He had an EEG & MRI in September. The MRI was clear; the EEG showed that he is still having seizures, but that they have decreased signifcantly. That is a normal thing that once someone is one medicine that the seizures are still occuring in the brain, but the meds block the effects of the seizure which is why we don't see them happening. As of yesterday he is down to 2 medications. He has been on these 2 since January. In March we had added a 3rd medicine, but for the past few weeks we have been weaning him off of that medication. We have already noticed positive effects of eliminating that medicine. He is much more alert & happy. We started the process of weaning medicine when we began noticing some speech and developmental issues. With the decrease of medicine we have seen those side effects decrease. We have an appt with his doctor on the 10th so we will see what our next step will be at that time. He is also scheduled for a neuro psych consult in December to aid in determining if the issues that we are seeing are related to his meds or if there is something else going on. But for now we thank God every day that he is not having seizures.
This little boy is still just chubby & happy! He has 8 teeth & likes to eat whatever we give him. He stands unassisted for short periods of time so we might be in trouble soon if he figures out how to walk without the assistance of furniture.
2 comments:
So cute! I just can't believe how different your kiddos are. Both so special!!
I am very behind in checking your blog but was so happy to read this update on Lincoln! How great that things are normalizing for him - and you!!!
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